Charlize Makenzie Aragona-Turgeon's Photo Album


Charlize Makenzie's Heart Story


Charlize was born June 24th 2007 a healthy baby girl, or so we thought, the pregnancy went extremely well, the labor went well and as far as we knew we were going home with another perfect addition to our family. On a routine check from the pediatrician before being released after birth, a heart murmur was discovered and for precautions they wrote us a consult for the Montreal Children's Hospital to ensure all was well with her heart. We assumed that all would be fine since both Mike and I have benign murmurs and though nothing more of it.

We were released and enjoyed 9 wonderful perfect days at home as a family. On her 9th day of life we met a cardiologist at the hospital; Charlize had an ultrasound and then an oxygen saturation test. Still in the dark as to why these were being done, we simply assumed it was routine and they were being thorough. It wasn't until the doctor sat us down and announced the earth shattering news of her congenital heart defect. More exactly they diagnosed her with Tetralogy of Fallot and announced that it would require a surgical intervention open heart surgery. From her status at that point they assumed that by 6 months old they would operate to patch the holes and widen her valve. That moment opened up a new chapter in our book and it affected many lives. Over the course of 3 months hundreds if not thousands of people learned and took strength from Charlize. Such a young life already affecting so many people in so many ways, I couldn't be prouder of my baby girl. She came into this world with a task and from the moment she was born she was teaching.

This isn't the journal of what we went through, our story is scattered across our online journal, as well as our diary, however these are the photos of our lives for about a month. The months from July to September 2007 were by far the most difficult as well as most exhilarating months of our lives.

The photos below are posted not in a way to show anything off, but more in hopes that will help others who find themselves in a similar situation. Before Charlize's surgery a friend shared pictures of her daughter post open heart surgery and it really helped us prepare for what we were about to go through. I just hope that these photos will do the same for another family and we can pay forward everything we received. What's the use of going through such an ordeal when you can't help others after it?

Our first hospital stay began August 16th, 2007 when she was admitted for observation as she was having a frequent number of Tet Spells and they were becoming more severe. Considering she went from going to monthly checkups to deteriorating so rapidly made us question what was going on with her heart. To certify our stay and get a room upgrade she had a severe spell right in the arms of a cardiologist, so within 30 minutes of being in the ward, we were rushed up to ICU. We spent 4 full days in ICU and 2 on the ward and were subsequently released on a medication and with the knowledge that surgery would be the next week. The scenario quickly changed as we were no longer at 6 months for the surgery, but instead at 2 months.

So we were released and desperately tried (an impossible task may I add) to live a normal life for the next 9 days. This petrified me as we were sent home with a baby with a congenital heart defect that was deteriorating quickly according to my motherly instincts and radar. Here are a few pictures of those few days at home.

Finally the big day arrived, literally. On our 4th wedding anniversary, August 30th, we were up at 3am, prepared everything, bathed her in antiseptic soap, brought her in at 6am to be admitted and at 8:30am gave her to the anesthesiologists for her surgery. The morning was spent with my parents and sister waiting around for updates and news, lunch to celebrate our wedding day and try to make the time pass by while we knew our daughter heart was being fixed a few blocks away. By early afternoon we received the phone call that all was good. Meeting with the surgeon post-op he explained that it ended up being an extremely complicated and complex surgery as it wasn't necessarily Tetralogy of Fallot, but instead Double Outlet Right Ventricle that mimicked Tetralogy of Fallot. The most fantastic news though was that not only did he do a complete repair, but that her pulmonary valve was in good condition and thus he saved it! As a result she won't need future valve replacement surgeries! However with all the manipulation of the heart we were warned and told to prepare ourselves that she would most likely require a pacemaker since she had heart block. Within 2 days however in ICU, her heart began beating on its own, the block was gone! A few bumps in the road later and her heartbeat settled nicely and they announced that she would not require a pacemaker either. She apparently completely astounded the cardiology staff by her thorough and quick recovery. Finally only 12 days after her surgery Charlize was released from the hospital and we were able to start the healing process from the comfort of home.

We were fortunate not encounter many complications on the road to recovery, and we are happy to say that not even a month post-op and she is home and no longer on any medication. We have our baby girl back, the wonderful staff at the Montreal Children's Hospital did exactly what they told us, they would take her from us, fix her up and give her back all new and perfect.


First Hospital Stay Pre-Op


Charlize Makenzie Aragona-Turgeon

Charlize is sleeping extremely soundly in the ICU, you see it wasn't that bad!


Charlize Makenzie Aragona-Turgeon

Daddy and Daughter sharing a moment of laughter amidst the craziness that is the Montreal Children's Hospital's Intensive Care Unit. Her Horsie WubbaNub is always close by!


Charlize Makenzie Aragona-Turgeon

Charlize snug and asleep in the MCH ICU. Cozy is cozy and sleep is always needed and welcome. Thanks again to Alex for the Horsie! Charlize is quite taken in by it!


Charlize Makenzie Aragona-Turgeon

Mother and Daughter snuggling together behind the curtains of the ICU


Charlize Makenzie Aragona-Turgeon

Mommy and Daugther laughing away while enjoying a bath in the MCH Pediatric Ward. A photo of Kyle snuggling with Charlize reminds her that he's waiting for her at home and keeps her company while at the hospital.



Second Hospital Stay Pre-Op


Last sleep in our bed before having to wake her up last feed, last meds and finally her middle of the night anti-bacterial bath.


Before bath time though a final beautiful hairdue was in order! What the???!!!


Hey! A 4am bath is SO much fun!


Weight pre-op.


In the Alternative Care Module waiting to give over to the surgeons. Can you tell we've been up since 3am?

Mommy
Papa


Second Hospital Stay Post-Op


***Okay, I'll put a warning for graphic photos down below...Warning, some graphic photos down below*** Please note, I did not put the really explicit ones. It's one thing having pictures that reflect our lives during that time online, but personally the explicit pictures are for those who ask us for them. We will be happy to share those with you but they are private and this is not show and tell of my daughter at her most fragile.

Day 1

Day 1-ICU, first time we see her about 4 hours after surgery. The lighting is from the heat lamps helping her stay warm. Notice the sheer amounts of wires, tubes and machines, slowly and surely, day by day they will disappear.


Toes

Notice the toes...they are PINK!


Machines view 1

The medication tower, just some of the stuff she was on.


Machines view 2

The ventilator and other tubes & wires.


Day 5

Day 5, already lots of tubes gone and she's off the ventilator, only oxygen to help her along.


Awake

She's awake! After 6 days of sedation she's awake!


Mom Writing

Mom or Dad was always by her side, usually writing her progression in her journal.


Slippers

It was all about the fashion statement! Not really, but I did appreciate being able to dress her toes, it was the only accessible part of her body that could have comforts of home.


Family

Day 8 - 7C1 - The Ward - Patience pays off, after more than a week we get to hold her again for the first time. (btw, I'm petrified of breaking her in that picture)


Mom

Can you tell I'm thrilled to be holding her again?!


Burp

Handling her takes some getting used to, but she doesn't seem to mind!


Family

There comes a moment when you see it in their eyes that everything is good. It helps having a cat on your head! In fact that cat helped keep her head warm at night in the room.


Play

Couldn't play like she usually does but we managed.


Hug

Daddy hug, just like when she ws born.


Last

The nurse taking off her last steri-strip, first time we see her chest, under that was just covering where the pace wires were.


Bath

First bath in 2 weeks! Washing off all the sticky stuff from all the tape!


Going home

Finally time to go home, this is just one of the MANY nurses who cared for her while she was there, however she cared for her during both admissions. You can see how happy she is that Charlize was doing well and on her way home!



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